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Veya’s story

The fight for her life in a broken and biased healthcare system – one that sees doctors perpetrating euthanasia and abortion and calling them both medical care.

*****

“Our sweet Veya Hope ran into the arms of Jesus yesterday.” So shared Veya’s mother, Krystal Vanderbrugghen, on her Instagram page on August 2, 2025. Krystal continued: “Her name was her calling – Hope. She carried it with her every single day she spent inside those hospital rooms and gave it to all who knew her.”

Veya was first introduced to the waiting world, and to the arms of her parents Krystal and Jeremy, just a year and a half earlier, on Dec 4, 2023. Although the LORD didn’t have many days allotted for Veya here on Earth, her life touched tens of thousands of hearts. And her experiences here also exposed just how difficult it can be to fight for care in a broken world and medical system.

“We pray that Veya’s story continues to encourage other families who are given this same precious gift – the gift of loving and raising a child with Down Syndrome,” Krystal explained.

Hope born

Jeremy and Krystal, along with their other children Ivylee, Irelyn, and Lincoln, live in Caledonia, Ontario. In the fall of 2023, as they were eagerly awaiting the birth of another child, they learned that their baby had a congenital heart defect which would require surgery at some point after birth.

“While this is a lot to process, we know without a doubt God truly has a perfect plan for this baby even though the road ahead is filled with uncertainties.”

That’s what Krystal shared at that time on Instagram, not realizing just how true these words would be for her and her family. She would continue to share with all who took an interest, the challenges of the road they were on. In an appearance on RP’s Real Talk podcast earlier this year, talking with Lucas Holtvluwer, Krystal explained that hospital stays brought their own problems.

“She was born with Down Syndrome and a cardiac defect – pretty straightforward – but she has now encountered some medical complexities from living her life in a hospital this long and delayed treatments.”

One complication and delay led to another, and Veya was transferred from Hamilton’s McMaster Hospital to SickKids Hospital in Toronto, which is one of the leading children’s hospitals in the world.

Crumbling care

“Our journey started off really great, like we had teams that were really invested,” Krystal explained to Lucas. “But then we experienced her care declining January of this year, so that kind of set her on a totally different trajectory.”

“Specifically with her last ICU admission, you could just tell through the conversations with the doctors that they were really just trying to wrap things up with her and kind of coerce us into letting her go rather than help her,” she shared on the podcast. “I feel like the team coach, trying to keep the spirits alive…. But they all just kind of vanished.”

Krystal was particularly confused when Veya was denied a necessary liver transplant. She asked their Pediatric Advanced Care team if it was Veya’s Down Syndrome that was influencing their decision-making. “They can never say yes or no, but they said, ‘Mom, I think you know the answer to that deep down in your heart.’ And I said, ‘well, that is the confirmation.’”

One particular incident really broke Krystal’s trust in Veya’s care.

“Right after her liver surgery, she got RSV [Respiratory Syncytial Virus], and then a few days after that, she got overdosed with a lethal amount of potassium. It wasn’t just a little bit, it was 10 times the regular amount that she normally gets, and it was during the evening when none of us were there.”

Veya’s heart rate went to 350 beats per minute, and she had to be shocked three times to stabilize her.

“I do have questions whether it actually was an accident or not, because these sorts of things happen when families step away. So, the timing of it, but also the amount. You know, it’s one thing, if you gave a little extra, but 10 times the amount, like, an actual lethal dose?”

Growing support

Krystal shared the ups and downs of Veya’s journey on her Instagram account. Her photos, videos, and touching words lit a fire in many hearts around the world, and she ended up with close to 40,000 Instagram followers, many of whom were praying for Veya, and encouraging Krystal and her family.

“For me, social media was like an open diary and a way for me to process but also a way for me to be able to connect with others that were raising children with Down Syndrome, because I knew nothing about it, and so it’s been a really great place for resources and connecting.”

But the care hasn’t only been virtual. Krystal and Jeremy are members of Trinity Canadian Reformed Church in Glanbrook, Ontario. And as she told Lucas back in July, “Our church community, they’re phenomenal. I’ll tell you this, we had a meal train set up for Veya when she was born, and we are 19 months into this and that same meal train is still going.” She added that the amount of support they have received allowed them to be fully present and to advocate for Veya, because everything else was being taken care of.

The many prayers that were raised for their family carried them. “I don’t think my husband and I really understood that till we lived this experience. Like you really feel carried by prayers. There’s just this indescribable peace that comes with it.”

Growing faith

We read in James 1:3 how “the testing of your faith produces endurance” and Krystal attested to this when speaking about their journey prior to Veya’s death.

“As much as we want to enter the next season of life and be off of this medical journey, there’s a part of you that doesn’t, because of the experience you have with God’s nearness. Because it forces you to slow down and really lean into him.
“….The ways we’ve experienced God’s goodness and care over these 19 months, we’re forever thankful for that. Faith is not without pain. It’s there to give you the courage to face it, right? And a lot of times this journey has really forced us to our knees.”

She later added that, as hard as it has been, they have seen so much good come from this journey already, particularly with the many interactions with people in the hospital.

Seeking justice

After Veya’s promotion to glory, Krystal shared with Reformed Perspective that they hope to have further meetings with SickKids Hospital regarding the neglect that Veya experienced, which Krystal sees as a push to end Veya’s life rather than care for it. “What was happening was the team was trying to stealth euthanize Veya through means of denying life saving measures.”

They are working with other families who experienced similar harms for their medically complex children at the same hospital, seeking to raise their concerns collectively. Her hope is to see a formal acknowledgement of harm, public reporting requirements, independent investigations, disability rights training, and whistleblower protection so that staff can report unsafe practices without fear of losing their jobs.

Although she has devoted much of her past couple of years as an advocate for Veya and others with disabilities, she also understands that she can only do so much. And that is OK. “Our God, The Creator of Life has the final say.”

Advice for others

When asked by RP what advice she would have for other families who may face similar situations, she urged them to document everything, including conversations and decisions, names, and copies of medical records. She also advised to never go into important meetings alone. Bring someone to witness and support you.

Further, use clear and assertive language like “can you explain in writing why you are denying this treatment?” And if there are concerns, escalate them by asking to speak with a patient’s relations person or ombudsman, or even filing a complaint with the hospital leadership or licensing board.

She encourages others to seek a second, or third opinion, and not be afraid to transfer care to another institution, even if it feels scary. And “trust your instincts – God gives them to us for a reason!” You know your child best so “if something feels wrong, it probably is.”

Most soberly, she warns “know that Canada has become a death culture.” In an age where it has become legal to end the life of someone who requests it simply because they are suffering, it becomes all the more important to be on guard for the care of our loved ones, particularly those who are more vulnerable. “Instead of offering care, too many hospitals offer ‘comfort care only.’ Instead of fighting for life, they push families towards giving up and will blame you for your loved one’s suffering.”

Her final advice is most encouraging. “You are not alone, God goes behind you and before you…. When you are battling the medical system for your child never forget to stop and ask God for guidance, strength, wisdom and peace. He sees, He knows, and He will lead you step by step.”

A tribute for Veya

In the weeks following Veya’s death, Krystal paid tribute to Veya with these words:

“I didn’t have to look into your eyes to fall in love with you. I didn’t need to hear your soft, raspy cry to know you loved me too. I didn’t have to hold your hands to cherish you forever – because from the very beginning, within my womb, our hearts were already intertwined.

“Veya, you changed me. Through you God gave me a deep perspective. You touched my soul and awakened a love so deep that can only be explained by His goodness. You gave me countless memories that I will hold close for the rest of my life. My heart aches in a way words can’t fully capture, and I know that ache won’t leave until we’re together again. …Though the longing never fades, each day moves me closer to the joy of holding you in Heaven.”

Pictures used with permission of the Vanderbrugghens.

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A lament for our nation

Lament is not a common word today. It is rare to hear of lamentation in our secular culture, and even within the Church we don’t often speak of lament. And yet, I believe lament is one of the most important – and biblical – postures that we can take as Christians in the public square today. Why lament? Consider our situation. We see (at least) 87,000 abortions every year here in Canada. Over 13,000 died by euthanasia last year, and that number grows every year. We’ve seen our fundamental freedoms eroded. Conscience rights for health care workers aren’t adequately protected. Our governments have redefined marriage by liberalizing divorce laws, recognizing same-sex marriages, and even starting to legitimize polyamorous relationships. The entire concepts of motherhood and fatherhood are fractured by our country’s policies on in vitro fertilization and surrogacy, and jurisdictions like Ontario are recognizing that kids can have many (not just two) parents. Hundreds of kids are pursuing medical gender transitioning, rejecting the bodies that God has given them. Counseling children to love the body and identity they have been given has been outlawed by conversion therapy legislation. Human trafficking, pornography, and prostitution are rampant in society. And our country, ostensibly still founded on the principle “that recognizes the supremacy of God,” has insisted that all cultures and all religions by-and-large are equal. Sin and brokenness are pervasive in all aspects of Canadian society. Let’s consider some potential unbiblical options of how to respond to this sin before coming to why we need to lament for our nation. Unbiblical responses 1. Do not grumble One response – the most unbiblical response – is to grumble. We can be tempted to complain to God, to each other, and to ourselves. But complaining is antithetical to the Christian life. The Israelites of the Old Testament were famous for grumbling. They complained about bitter water or a lack of water (Ex. 15:24, 17:3), about a lack of food (Ex. 16:2), their misfortunes (Num. 11:1), the strength of the Canaanites (Num. 14:2), and their leadership (Num. 16:11, 41; 17:5). In most of these instances, God punished His people. He had just brought them out of Egypt with a mighty hand and an outstretched arm and, rather than worshipping and praising Him, they complained. Rather than “grumbling or disputing,” Paul calls on Christians to be “blameless and innocent, children of God without blemish in the midst of a crooked and twisted generation, among whom you shine as lights in the world” (Phil. 2:15). We confess that “it is impossible for those grafted into Christ by true faith not to produce fruits of gratitude” (HC Q&A 64). 2. No need to fear Another response to a bleak political situation is fear and anxiety, but this too is an unbiblical response. We may fear persecution from our culture, tyranny from our government, or censure from media companies. But in Philippians 4, Paul instructs followers of Christ, “do not be anxious about anything.” Christ Himself commands us “do not be anxious about your life, what you will eat or what you will drink, nor about your body, what you will put on” or about anything else for that matter (Matt. 6:25-34; Luke 12:22-31). The most frequent command found in Scripture is “do not be afraid.” 3. Do not be angry Another common response to this sin-filled world is anger. Anger can be a powerful motivator to inspire people to speak up and to act. And, unlike complaining or anxiety, there is some biblical justification to be angry (e.g., Eph. 4:26). When people sin and transgress the law of the LORD, there is a reason for righteous anger. Jesus Himself became angry on occasion with a righteous anger (Mark 3:1-6 and Mark 10:13-16). Scripture, however, portrays human anger as a negative phenomenon in almost every instance. Proverbs often counsels the wise and the righteous to refrain from anger (Prov. 14:29, 15:18, 16:32, 19:11, 22:24, 29:22). The apostle Paul commands believers to put away anger on several occasions (2 Cor. 12:20; Gal. 5:20; Eph. 4:31; Col. 3:8; 1 Tim. 2:8). Our fallen anger makes us susceptible to sin. (Perhaps why Eph. 4:26 says “be angry and do not sin.”) Anger can easily lead to hasty and thoughtless words and actions. Perhaps this is why James admonishes believers to be “slow to anger; for the anger of man does not produce the righteousness of God” (James 1:19-20). Like fire, anger can be a beneficial and God glorifying tool when used in the right way, yet it can easily grow out of control and cause great spiritual (not to mention temporal!) damage. So instead of complaining, fearing, or being angry about the state of our nation, a more biblical response is lament. An example of lament Scripture is full of laments, but the best example of lamentation flows from the prophet Jeremiah and the people of Judah in exile. Put yourself in their shoes. Close your eyes. Take a deep breath. Clear your mind. Imagine you are a young Jew living around 609 BC. You and your people are led by King Josiah. Your life revolves around a divinely inspired calendar of feasts and sacrifices. In fact, you just celebrated a Passover the likes of which hadn’t been observed since the days of the judges. You observe a weekly Sabbath day of rest, a year of Sabbath rest of the land every seven years, and a year of Jubilee every 50 years. You periodically visit the glorious temple of Solomon in Jerusalem, perhaps the most ornate, beautiful, and costly structure on earth. There the Levite singers and musicians make music to God and the priests offer sweet incense to the LORD. God has promised that a descendent of David would sit on the throne of Judah forever. In fact, the current king “turned to the Lord with all his heart and with all his soul and with all his might” so that there was never a king that came before him or after him that pursued the LORD with such fervour (2 Kings 22-23). Life is good. During your lifetime, all that comes crashing down. The Egyptian Pharoah Neco kills godly King Josiah, hauls his successor, King Jehoahaz, in chains to Egypt, exacts a heavy tribute from Judah, and sets up a puppet king, Jehoiakim, on the throne. After a stint under Egyptian oppression, King Nebuchadnezzar of Babylon puts your country under tribute. When King Jehoiakim rebels against Babylon, bands of Chaldeans, Syrians, Moabites, and Ammonites begin raiding your country. King Nebuchadnezzar comes back with a vengeance, besieges and conquers Jerusalem, carries away all the treasures of the temple and the king’s house, and carries away all the royal family, all officials, all the mighty men of valor, all the smiths and craftsmen, and 10,000 more captives. Only the poor remain under another puppet king, Zedekiah. Thankfully, the temple, the center of Jewish life, still stands. But your religious leadership pollutes this temple. Then Zedekiah rebels against Babylon too, prompting Nebuchadnezzar to return again to besiege Jerusalem and trigger a terrible famine in the city. When the city falls, Nebuchadnezzar slaughters Zedekiah’s sons in front of him, gouges out Zedekiah’s eyes, and carries him off to Egypt. But at least the temple still stands. A few years later, Nebuchadnezzar attacks Jerusalem a third time, destroying every building in Jerusalem, including the temple, and tearing down the walls. Even the poor people who were originally left in Jerusalem are carried off to Babylon, except for the poorest of the poor who are left to work the land.  And even after all this, the poorest of the poor rebel against Nebuchadnezzar, murder the governor, and flee in fear to Egypt, the very place that God had led them out of slavery 890 years before. And so, the land lays desolate. Your nation is utterly destroyed. Your whole religion revolving around the temple, sacrifices, and feasts is impossible. There is no descendant of David seemingly on the throne. It’s a horrific state of affairs. What was the response of the Jews carried off to Babylon? They responded with lament. We get a glimpse of this in Psalm 137: “By the waters of Babylon, there we sat down and wept, when we remembered Zion.” But the main lamentation over the exile is written by the prophet Jeremiah. While there isn’t a book of Complaining, of Anxiety, or of Anger in Scripture, there is a book of Lamentations. For almost the entire book, Jeremiah recounts and laments the destruction of Jerusalem. The book opens, How lonely sits the city that was full of people! How like a widow has she become, she who was great among the nations! She who was a princess among the provinces has become a slave. She weeps bitterly in the night with tears on her cheeks; Among all her lovers she has none to comfort her; All her friends have dealt treacherously with her; They have become her enemies. Judah has gone into exile because of affliction and hard servitude; She dwells now among the nations but finds no resting place; Her pursuers have all overtaken her in the midst of her distress. What is a lament? Lament, properly speaking, is a uniquely Christian activity. It isn’t complaining, though it certainly recounts all the evils of this present age. It isn’t anxiety, although the situation certainly seems bleak and full of uncertainty. And it isn’t primarily angry, despite the calls for judgement on Babylon found in the final verses of Psalm 137. And lament isn’t just mourning what has been lost. A lament has hope. That’s why, smack dab in the middle of the book of Lamentations and in the middle of perhaps the most hopeless period of Judah’s existence, Jeremiah confesses, “But this I call to mind, and therefore I have hope: the steadfast love of the LORD never ceases; His mercies never come to an end; they are new every morning; great is Your faithfulness” (3:21-23). One hundred and one years ago, Thomas Chisholm plucked these words out of Lamentations to create the hymn Great Is Thy Faithfulness. It is a beautiful hymn of hope and praise. But it helps to remember its scriptural context. God’s faithfulness is wonderful indeed when we consider how He changes not; how all nature witnesses to His great faithfulness, mercy, and love; and how His presence cheers and guides us, as the hymn’s verses recount. But those truths aren’t the context for Jeremiah’s confession when he says, “great is thy faithfulness.” Lamentation over the destruction of Judah and the captivity of the Jews (Jeremiah is in captivity himself) is the context. God’s faithfulness is always important, but it tastes the sweetest when it is juxtaposed with the evils of this world. Lamentation today Politically, culturally, socially, economically, religiously – really any way you can think of – we are in a far better position than Judah was at the start of the exile. As we’ve already recounted, we certainly face many evils in this dark world that tempt us to respond with complaints, fear, or anger. But I think that the best response is lament. We can lament instead of complaining about the failure of political leaders to follow God’s will. We can lament rather than fear the cultural hostility to orthodox Christianity. We can lament rather than rage about the injustices in the world. And lament does more than just look around at others. It confesses our own wrongdoings, remembers the faithfulness of our sovereign God, and prays for His intervention. And so, I lament for our nation. And I’ll do it with a song, a Jeremiah lament-style version of Great Is Thy Faithfulness: O LORD, our nation reviles and forgets Thee. We have departed from thy righteous law. We deserve judgement and none of thy favour, But I call this to mind and so have hope: Great is thy faithfulness! Great is thy faithfulness! Morning by morning new mercies I see: The steadfast love of the LORD never ceases – Great is thy faithfulness, LORD, unto me! Levi Minderhoud is the BC manager of ARPA Canada....